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For Gastrointestinal Stromal tumor, Pheochromocytoma, Paraganglioma, Carney Triad, Carney-Stratakis Dyad, and others

Support Groups

Many rare cancers have places on the web where patients, caregivers and survivors can interact and share information.

(It's helpful to get advice from friends.)

Social support & forums:

SDH-driven cancers:

SDH-Research Advocates on Facebook: Click here

SDH-deficient GIST:

Life Raft group (website): Click here

Pheochromocytoma/Paraganglioma:

Pheo/Para Alliance (website): Click here
Pheo/Para Alliance on Facebook: Click here

SDH-deficient Renal Cell Carcinoma:

SDH-deficient Renal Cell Carcinoma on Facebook: Click here

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