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Support Groups

Many rare cancers have places on the web where patients, caregivers and survivors can interact and share information.

(It's helpful to get advice from friends.)

Social support & forums:

SDH-driven cancers:

  • SDH-Research Advocates on Facebook:  Click here

 

SDH-deficient GIST:

 

Pheochromocytoma/Paraganglioma:

 

SDH-deficient Renal Cell Carcinoma:

  • SDH-deficient Renal Cell Carcinoma on Facebook: Click here

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